Cardiogen

Characteristics and Prognosis of Wild-Type Transthyretin Amyloid Cardiomyopathy Patients Diagnosed Before 65 Years Old.

Guijarro. Damien D; Eicher. Jean-Christophe JC; Bézard. Mélanie M; Pir...

The study looked at people with a heart disease called wild‑type transthyretin amyloid cardiomyopathy (ATTRwt‑CM) who were diagnosed before age 65. It found that early‑diagnosed patients make up a small slice of all cases, tend to have more joint and bone problems, and are diagnosed much faster than older patients. Their survival after diagnosis is better than those diagnosed later.

Clinical care of family members of patients with dilated cardiomyopathy.

Verdonschot. Job A J JAJ; Kaski. Juan Pablo JP; Asselbergs. Folkert W FW; Behr....

The Healthcare Amyloidosis European Registry (HEAR): design of a national registry with a European extension strategy, and foundation of the F-CRIN GRACE network.

Réant. Patricia P; Kharoubi. Mounira M; Donal. Erwan E; Bauer. Fabrice F; B...

This paper describes a new European registry that will collect detailed information on people with cardiac amyloidosis, a rare heart disease. It’s a big data‑gathering project, not a study of a drug or a peptide, and it doesn’t give any direct advice or protocols you can use right now.